After my child passed away from Thanatophoric Dysplasia, I expected the grief. What I didn’t expect was how quickly my voice would fade in the community I once lived and breathed. I used to be part of every medical conversation; now, it’s like my opinion doesn’t matter. People forget I’m still here. But I am. I’m still her mom, still an advocate, and my experience still matters.

Marriage is tested in many ways, but when raising a medically fragile or special needs child, the trials deepen and so does the love, if we let God guide the way. This post shares real, raw, and encouraging truth about navigating marriage through the storms of special needs parenting.

A powerful reminder to medical mamas: you can care for your medically fragile child. I did it with my daughter Paisley; no nurses, just love and strength. You are more capable than you know.

At 20 weeks pregnant, I was told my daughter had a rare condition called Thanatophoric Dysplasia. What followed was a journey of fear, faith, and finding peace in the unknown.

Grief can feel all consuming, but self-care is a quiet way back to yourself. In this post, I share how writing, creativity, solitude, and simple daily rituals have helped me navigate life after loss. If you’re grieving, know this: healing doesn’t mean forgetting it means learning to care for your heart, one gentle step at a time.

A mother’s raw, honest story of raising a healthy son while grieving her medically fragile daughter who passed away; exploring guilt, love, and the duality of motherhood after loss.

When I first heard the words Thanatophoric Dysplasia, it felt like the world around me shattered. It’s a name most people have never heard, a condition so rare it affects only a handful of families across the globe. It’s a skeletal disorder that doctors often describe with fear and finality. But what no medical textbook… Read more: Paisley’s Light: Life, Love, and Lessons Through Thanatophoric Dysplasia

Grief is a storm that changes everything. When you lose a child, the world as you knew it is no longer the same. Time stops, then moves forward without asking if you’re ready. The sun rises again, but it doesn’t feel warm. Life keeps going, but you’re left trying to figure out how to keep… Read more: Healing Through Grief: The Journey After Losing a Child

When I sat down to name this space, I wanted something that felt true; something that held the weight of my story, but also the strength in it. Able Mama, Brave Soul came straight from my heart. I’m a special needs mama. I’ve learned what it means to be “able” in ways that go far… Read more: Naming My Story